Waiting to be admitted to Children’s Hospital to start a 4 day in-patient chemo regimen: She brought all her comfort-friends: Appley the kitty, Ponyo, and new Teddy- who has a hood just like Sophie Chemo feels to me like signing our daughter up for blood-letting by leeches. Wreaking havoc on her body with the hopes of healing her by it. It’s so medieval but its our best modern option. It makes me sick to actually think about what must be done to attempt to shrink a tumor. We’ve basically consented to poisoning our beloved baby in an effort to poison the cancer too. An example of the toxicity of the chemo drugs: we have to wear gloves to change her diapers in case the excreted chemo in her diaper touches our skin!
The good news though is that she’s tolerating it all really well so far. She had some vomitting on days 2 and 3 of the oral chemo medications at home and is just fatigued here starting day 2 at the hospital. But even a healthy person would be fatigued in a hospital. So many pokes, prods, tests, a barrage of nurses, docs, and therapists and after all that- nighttime sleep interruptions. An example of how the first 7 hours of strong chemo drugs can’t squelch Sophie’s happy, adorable fun-loving personality: (the tumor has caused facial nerve palsy, so while she can’t smile well, she can still laugh) 🙂