Sophie’s brainstem tumor was successfully biopsied and she has recovered well enough to be discharged to our care this afternoon while we wait for biopsy results and a treatment plan! Her tumor continues to grow in the meantime- affecting her vision, hearing and balance/coordination on her right side. She needs constant close supervision while she figures out that she can’t do the things she used to do safely. The doctors prescribed high-dose steroids to counteract any swelling caused by the tumor that may be further affecting her function. The bad news with that though is that the side-effects are unbearable: she’s ravenous, cranky and restless much of the time and unable to sleep more than 10-40 minutes before she’s awake again for a 3-4 hour stretch. This happens all night long as well as in the daytime. We are hoping her doctors can prescribe something else to help with this before treatment starts. We are looking forward to going home together and getting some rest after these past several hectic and stressful days.